Hello blogland. Sorry I have left you hanging for so long but the last 24+ hours where not what we had planned. Allow me to fill you in. First the entire process of preparing D for his procedures was probably the hardest things that I ever had to witness him go through. At one point on Friday morning I was so scared that he was going to pass out on us – he was so pale and week. We made it to the hospital and thankfully did not have a lot of waiting around to do. He got right into the holding room and they discussed the anesthesia process that was going to occur with us. During that time he started to complain of a headache and then proceeded to throw up stomach bile. I was on the verge of a freak out but kept my cool – do not ask me how but it took every ounce of my being to do so. He got a little oral medication to relax him which helped his nausea and he started to feel better. I was allowed too go into the operating room with him and I held him while he inhaled the gas and drifted off to sleep – that was TOUGH!!! I cried A LOT and on my way out I said to all the occupants in the room “Take care of my baby”. A very kind nurse escorted me back to the holding room so that I could get my composure before going to find Charlie. I ventured out to the waiting room but both me and Charlie were in no mood to sit on our butts and wait. We got some tea and coffee to drink and then hung out in the hallway where we knew the doctor would be coming out at the end of the procedures. To our surprise, the doctor was very punctual and he finished right on time. He came out and told us that he was shocked at what he saw – NOTHING LOOKED ABNORMAL. He was certain that he was going to find inflammation or a sign of disease but he did not. He ended up doing a biopsy to test and see if there is anything microscopic going on. We were then allowed to go to D and be with him as he woke up. He stayed asleep for probably another hour. He came to and remained a bit groggy but request food ASAP. He was allowed to eat graham crackers and boy did he chow down – he ate 4 packages. The doctor came back and checked him out at about 2 o’clock and since D looked great we were told to get him dressed and get ready to head home. Well when D stood up the unexpected happened – he started to bleed and more than seemed normal. The doctor told us that he was going to admit him and keep a watch on him over night. They took some blood to test and see if his red blood count was decreasing and to check and see if his blood was clotting. I seriously can not express my feeling at that point in words – I was angry and scared at the same time. My emotions were so tapped by this point I felt like I was almost in a daze. We had to wait quite a while before a room was ready for us but the hospital staff was amazing the whole time. We were given a DVD player with a Spongebob video to keep D occupied. Once we were in his room he had already passed more discharge which, of course, was making me even more worried. D remained calm the entire time – he is such a trooper.
He got some tape and started putting it on his head and legs. I think the meds left him a little loopy.
He was telling us that the tape he was sticking to his body would protect him.
Charlie stayed with us for a while but then had to head home and take care of Otto. Since the hospital was all the way in Boston (about an hour from our house), he decided to get some sleep at home and come back to the hospital early in the morning.
I stayed right by his side ALL night.
We watched movies until about midnight. He really was not happy about having to sleep at the hospital and I was not being to pushy about bedtime. At one point in the middle of the night, D rolled over and said to me “Mommy, I am so glad that you are here with me”. I snuggled him a little closer and was so thankful that he was feeling comfortable being in a strange place. A hospital is really no place to try and get a good sleep. It was so noisy and bright – not the slightest bit relaxing.
He slept until about 6 which is kind of early for him. I asked his nurse if he could now eat because after the bleeding occurred he was not allowed to eat anything. So all this kid had eaten since Wednesday night was Jell-O, Italian Ice, broth, ginger ale and the graham crackers– he was starving. The nurse said he could, in fact, eat. I made him toast with jelly, corn flakes and chocolate milk. I have never seen him wolf down food so fast. I could see how happy he was chowing down every single bite.
We had more waiting to do as they wanted to do another blood test to make sure the bleeding had stopped. He watched more TV with bubby.
At one point he was given some toys to play with and he seemed to be getting back to his old self.
The blood work came back all normal and we were free to leave. By this time we were all getting pretty stir crazy. I could not wait to be able to clean up and brush my teeth. Obviously staying overnight was not the original plan so I had nothing to groom myself with – I was feeling extremely cruddy. We finally made it back home today around 2 o’clock. WOW, what a stressful time that was. I can not believe what an adventure that turned into.
I am just so thankful that D is home and that we did not have any more complications to deal with. He was truly an amazing patient through all of this. It really did help that the team of medical professionals at the Tufts Floating Hospital for Children were great and attended to his every need. We could not have been at a better hospital.
So there you have it my friends. We now have to wait and see what comes out of the biopsy which does take about 2 weeks. D can actually resume a normal diet without any restrictions. I am still going to limit the amount of processed foods that he eats and try to get him to eat more veggies and fruits.
Thank you all for the support you have shown to us during this ordeal. I am keeping my fingers crossed that it is just about over.
Enjoy the rest of your night.